Official Journal of the Asian Bioethics Association (ABA)
World Wide Web site: http://eubios.info/index.html
Topical list of News in Bioethics and Biotechnology
List is complete 1991 - January, 1998, in 31 topics. News from 1991-1993 are in the OLD news files, and from 1994 in the NEW files.
165 Turkish Bioethics Roundtables - Darryl Macer
166 Inspirations of the Ankara Roundtables on Bioethics - Rusen Keles
166 Teaching Bioethics and Biopolitics in a cross-disciplinary Graduate Context - Yaman Ors
169 Right to Environment: Does it Reflect Environmental Ethics? - Nukhet Turgut
171 Science, Ethics and Ecology - Hunay Evliya
176 New Approaches to Business Ethics - Cemal Yukselen
177 Evolution versus Creation in Schools - Aykut Kence
178 Ethical Aspects in Genetics Research - Ajlan Tukun and Isik Bokesoy
181 Ontology and Bioethics: the Case of Human Dignity Principle in Human Genetics - Maurizio Salvi
183What do we Learn from Japanese Feminist Bioethics? - Masahiro Morioka
184 Training in Health and Child Care for Rural Dalit Women
Comments and suggestions will be welcome to Giovanni Ferraiolo, International Centre for Genetic Engineering and Biotechnology, Area Science Park, Padriciano 99 I-34012 Trieste, Italy. Email: biosafe@icgeb.trieste.it Fax: +39 (0) 40 3757363
On Gene Therapy News<http://www.med.upenn.edu/ihgt/ info/links1.html> UNFPA <http://www.unfpa.org>
A meeting of the network was held on 6 November during IAB4 conference, and proposals are welcome, like the one below:
At the recent TokyoCcongress of the International Association of Bioethics, the genetics network (of which you are a member) agreed to circulate information about national and international ethical issues in human and animal genetics research, testing and screening, and modification/therapy. One thing it would certainly be useful to know is what different arrangements exist for regulating these activities in each country.
In the UK we (Darren and Richard) are not sure who regulates genetic research and propagation of plants and animals. In humans, the Human Fertilisation and Embryology Authority is responsible for research and practice in assisted human reproduction, which sets much of the context. This is a statutory authority which has specific powers of review and control. The Human Genetics Advisory Commission is only advisory, and reports to the Department of Health. In addition there are specific committees for regulating genetic testing and gene therapy: Advisory Committee on Genetic Testing (ACGT) and (Gene Therapy Advisory Committee (GTAC). The Human Fertilisation and Embryology Authority have responsibility for regulating research and clinical services in connection with reproduction more generally which sometimes has implications for genetics.
What is the situation in your country? Do you use formal legal rules, informal advisory committees to government or medical professions, or are any aspects of genetic research and technology unregulated?
Thanks in advance for your replies! We thought that it may be a useful starting point for information sharing between network members. Any suggestions for further information that could be collated by the Network would be appreciated. Please circulate this message to anyone else who you may think has information to share.
- Dr. Richard Ashcroft, Centre for Ethics in Medicine, University of Bristol, 73 St Michael's Hill , Bristol BS2 8BH, UK
Tel 44 117 928 9843 Fax 44 117 927 9814
Email: Richard.Ashcroft@bristol.ac.uk
- Dr. Darren Shickle, Public Health Medicine, University of Sheffield School of Medicine, UK
Tel 44 114 2220818 Fax 44 114 222 0791
Email: d.shickle@sheffield.ac.uk
New Members:
Dean Bell
Associate Lecturer
University of Sydney Law School
173-175 Phillip Street
Sydney NSW 2000
Australia
Fax 61 2 9351 0200
Email: deanb@law.usyd.edu.au
International law and human genome
- Professor Evan Willis
Health Sociology Research Group, School of Sociology and Anthropology,
La Trobe University, Bundoora, Vic, 3083, Australia
Email: SOCEW@LURE.LATROBE.EDU.AU
- Dr Philippe Foubert
Hospital Ethicist, Mater Misericordiae Hospital Complex, Aubigny
Place 216, Raymond Tce, South Brisbane 4101 QLD AUSTRALIA
Tel: Int+61-7-3840-8022 Fax: Int+61-7-3840-1981
Email: pfoubert@mater.org.au
Bioethics; Clinical Ethics; GenEthics
- Jon J. Jonsson, M.D., Ph.D.
Docent and Director, Department of Clinical Biochemistry
Landspitalinn - National University Hospital of Iceland
Tel.: 354-560-1840 FAX: 354-560-1810 Email: jonjj@rsp.is
Pekka Louhiala
Myllytie 8, 16900 Lammi, Finland
Email: pekka.louhiala@helsinki.fi
Please join us in the formation of a network of people who want to talk openly about deep spiritual, personal understandings that underlie bioethical thinking and decisions. To use a term from the field of literary criticism, we want to "deconstruct" ourselves, to bring out to the surface those thoughts and feelings and intuitions and sparks of prophesy, the angels and the daemons which we are often embarrassed to admit publicly because they are not "scientific" enough. We want to try to say what we mean rather than what we don't mean. Doesn't so much of what we say and write really cover up, rather than expressing, what we really think and feel, what the deep motives are for the positions which we take publicly?
This is a place for those who feel that what a nurse or a physician feels when alone in the middle of the night with a terminal patient, and is ashamed to tell to colleagues in the morning, might mean at least as much if not more to clinical ethics than our scholarly articles. What we sense and feel during the gaps of silence during our conversations at scientific conferences might teach more bioethics than our formal presentations.
We think that there -- in the secret things -- might be where the meaning of life, the true basis of bioethics, might be found.
We are not interested (within this network at least) in scholarly researches into religious texts, religious law, anthropology of religion etc. These things are important but their place is elsewhere, perhaps in other networks.
Anyone interested in joining the mystical bioethics network may
contact:
Frank Leavitt email: yeruham@bgumail.bgu.ac.il
Erin Williams email ewilliams@geneticmedicine.org
Please write simultaneously to both of us.