pp. 312-316 in Intractable Neurological Disorders, Human Genome Research and Society. Proceedings of the Third International Bioethics Seminar in Fukui, 19-21 November, 1993.

Editors: Norio Fujiki, M.D. & Darryl R.J. Macer, Ph.D.


Copyright 1994, Eubios Ethics Institute All commercial rights reserved. This publication may be reproduced for limited educational or academic use, however please enquire with Eubios Ethics Institute.

List of Contributors

Kiichi Arahata,
Professor, Dept. of Neuromuscular Research, National Institute of Neuroscience, National Center of Neurology and Psychiatry, 4-1-1 Ogawa-Higashi, Kodaira, Tokyo 187, JAPAN

Shukuro Araki,
Professor Emeritus, Kumamoto University; Director, Neurological Center, Mitui Ohmuta Hospital, Ohmuta, Fukuoka 836, Japan

Paul Billings,
Associate Clinical Professor of Medicine, Stanford University, Palo Alto, California 94304, USA

Walter Bodmer,
Director-General, Imperial Cancer Research Fund, London, U.K.

Joann Bodurtha,
Professor, Medical College of Virginia, Virginia Commonwealth University, Richmond, VA, USA.

Victor Bulyzhenkov,
Director, Hereditary Disease Programme, Division of Noncommunicable Diseases,World Health Organisation, 1211 Geneva 27, SWITZERLAND

Angus Clarke,
Senior Lecturer, Department of Medical Genetics, University of Wales College of Medicine, Cardiff, Wales CF4 4XW, U.K.

Robert Mullan Cook-Deegan
Vice Director, Institute of Medicine, National Academy of Sciences, 2101 Constitution Avenue, NW, Washington, DC 20418, USA

Jean Dausset,
President of MURS France, 9 Rue de Villesexel, Paris 75007, FRANCE

Koichi Emi,
Director, Institute for Economic Research, Teikyo University, Tokyo, JAPAN

Norio Fujiki,
Professor, Dept. of Internal Medicine and Medical Genetics, Fukui Medical School, Matsuoka-cho, Fukui 910-11, JAPAN

Norio Fujisawa,
Director, Kyoto National Museum, 527 Chayamachi, Higashiyama-ku, Kyoto, JAPAN

H. Galjaard,
Professor of Human Genetics & Chairman, Dept. of Clinical Genetics, Erasmus University, Postbus 1738, Rotterdam, The Netherlands

Hideo Hamaguchi,
Professor, Department of Medical Genetics, Institute of Basic Medical Sciences, University of Tsukuba, Ibaraki 305, JAPAN

Mikio Hirayama,
Assistant Professor, Dept. of Internal Medicine and Medical Genetics, Fukui Medical School, Matsuoka-cho, Fukui 910-11, JAPAN

Noboru Ienaga,
Chairman, Institute of Medical Humanities, Kitasato University, Kanagawa 228, JAPAN

Kyohei Igarashi,
Producer, NHK Fukuoka Station, 1-1-10 Ropponmatsu, Chuo-ku, Fukuoka, 810, JAPAN

Yoko Imaizumi,
Director, Institute of Population Problems, Ministry of Health and Welfare, Tokyo 100, Japan

Masayuki Inoue,
Director, International Scientific Affairs Division, Ministry of Education, Science and Culture, Tokyo, JAPAN

Samon Ishikawa,
Chief Executive Director, Tokyo Progressive Muscular Dystrophy Association, 3-5-21 Tamadaira, Hino-city, Tokyo 206, JAPAN

Yasuo Kagawa
Professor, Jichi Medical School Department of Biochemistry, Minamikawachi, Tochigi, 329-04, JAPAN

Sawako Kawamura,
Professor, Division of Nursing, Department of Allied Health Sciences, Tokyo Medical & Dental University, Tokyo 113, Japan

Ichiro Kanazawa,
Professor, Dept. of Neurology, University of Tokyo, Tokyo 113, JAPAN

Yung Sun Kang,
Professor, Dept. of Genetic Engineering, Suwon University, Suwon P.O. Box 77, KOREA

Vijay Kaushik,
Research Fellow, Institute of Philosophy, Russian Academy of Sciences, Moscow, RUSSIA

Yasuko Kinoshita,
Professor, Shiraume Gakuen College, Tokyo, JAPAN

Shosyu Kohzuki,
Priest, Eiheiji Temple, Fukui, JAPAN

Kiyotaro Kondo,
Professor & Chairman, Department of Public Health, Hokkaido University School of Medicine, N15, W7, Sapporo 060, Japan

Yukio Kurita
Governor of Fukui Prefecture, Fukui 910, JAPAN

Tutomu Kuwaki
Emeritus Professor, Chuoh University, Tokyo

Frank J. Leavitt,
Faculty of Health Sciences, Ben Gurion University of the Negev, Beer Sheva, P.O.B. 653, 84105 Israel

Chung Choo Lee,
Professor, Dept. of Molecular Biology, College of Natural Sciences, Seoul National University, Seoul 151-742, KOREA

Wilson H.Y. Lo,
Professor, Institute of Basic Medical Sciences, Peking Union Medical College, 5 Dong Dan San Tiao, Beijing, CHINA

Darryl Macer,
Foreign Professor, Institute of Biological Sciences, University of Tsukuba, Ibaraki 305, JAPAN

Victor A. Mckusick,
University Professor of Medical Genetics, Johns Hopkins University School of Medicine, Blalock Building, Room 1007, 600N. Wolfe Street, Baltimore, Maryland 21205, USA

Kenichi Matsubara,
Director, Institute for Molecular and Cellular Biology, Osaka University, Suita 565, JAPAN

Federico Mayor,
Director-General, UNESCO, 7 place de Fontenoy, 75700 Paris, FRANCE

Aubrey Milunsky,
Professor & Director, Center for Human Genetics, Boston University School of Medicine, 80 East Concord Street, Boston, Massachusetts 02118, USA

Shiro Miwa,
Director, Okinaka Memorial Institute for Medical Research, 2-2-2 Toranomon, Minato-ku, Tokyo 105, JAPAN

Masahiro Morioka,
Research Fellow, International Research Center for Japanese Studies, Goryo, Nishikyo, Kyoto, 610-11, JAPAN

Roxanne Mykitiuk,
Assistant Professor, Faculty of Law, University of Alberta, Edmonton, Alberta T6G 2H5, CANADA

Toshitaka Nakahara,
Director, Department of Public Health Administration, The Institute of Public Health, Ministry of Health and Welfare, Tokyo 100, JAPAN

Hiroshi Nakajima,
Director-General, World Health Organisation, 1211 Geneva 27, SWITZERLAND

Mahito Nakanishi,
Assistant Professor, Institute for Molecular and Cellular Biology, Osaka University, 1-3 Yamada-oka, Suita, Osaka, 565 Japan

Robyn Yuri Nishimi,
Senior Associate, Office of Technology Assessment, U.S. Congress, Washington, DC 20510-8025, USA

Ikuya Nonaka,
Head, Dept. of Laboratory Medicine, National Center Hospital for Nervous, Mental and Muscular Disorders, NCNP, Kodaira, Tokyo 187, Japan

T. Okada
Professor Emeritus, Kyoto University; Biohistory Research Hall, Takatsuki, JAPAN

Michio Okamoto,
Director, International Institute for Advanced Studies, 7F Karasuma IMI Bldg, Karasuma Matsubara, Shimogyo-ku, Kyoto 600, JAPAN

Yukio Ohtake,
Mayor of Fukui City, Fukui 910, JAPAN

Makiko Osawa,
Associate Professor, Dept. of Pediatrics, Tokyo Women's Medical College, 8-1 Kawada-cho, Shinjuku-ku, Tokyo 162, JAPAN

Leslie A. Platt,
Executive Vice President, The Institute for Genomic Research, 932 Clopper Road, Gaithersburg, Maryland 20878, USA

Alain Pompidou,
Professor, Laboratory of Histology, Embryology & Cytogenetics, Faculty of Medicine, Cochin, Port Royal, 24 Rue du Feubourg - Saint Jacques, 75014 Paris, FRANCE

Pinit Ratanakul,
Professor & Director, Center of Human Resources Development, Mahidol University, 45/3 Lad-Prao 92 Bangkapi, Bangkok 10310, THAILAND

Hyakudai Sakamoto,
Professor, Department of Philosophy, Aoyama Gakuen University, Tokyo, Japan

Itsuro Sobue,
President, Aichi Medical University, JAPAN

Yasuko Shirai,
Associate Professor, National Center of Neurology and Psychiatry, National Institute of Mental Health, 1-7-3 Kohnodai, Chiba 272, JAPAN

Hideo Sugita,
Director, National Institute of Neuroscience, National Center of Neurology and Psychiatry, 4-1-1 Ogawa-Higashi, Kodaira, Tokyo 187, JAPAN

Yoshiyuki Suzuki,
Vice-Director, The Tokyo Metropolitan Institute of Medical Science, 3-18-22 Honkomagome, Bunkyo-ku, Tokyo 113, JAPAN

Fumimaro Takaku,
Director, International Medical Center of Japan, 1-21-1 Toyama, Shinjuku-ku, Tokyo 162, JAPAN

Hiraku Takebe,
Professor, Dept. of Experimental Radiology, Faculty of Medicine, Kyoto University, Sakyo-ku, Kyoto 606, JAPAN

Kanji Torizuka,
President, Fukui Medical School, Matsuoka-cho, Fukui 910-11, JAPAN

Knut Erik Tranoy,
Emeritus Professor, Center for Medical Ethics, University of Oslo, Gaustadalleen 21, Osolo 3, N-0371, NORWAY

Shoji Tsuji,
Professor, Department of Neurology, Brain Research Institute, Niigata University, 1 Asahimachi, Niigata 951, Japan

Craig Venter,
President, The Institute for Genomic Research, 932 Clopper Road, Gaithersburg, Maryland 20878, USA

Ishiwar C. Verma,
Professor, Dept. of Pediatrics, All India Institute of Medical Sciences, New Delhi, INDIA

Daniel Wikler,
Professor, Program in Medical Ethics, University of Wisconsin Medical School, 1300 University Avenue, Madison, Wisconsin 53706, USA

Kunio Yagi,
Director, Institute of Applied Biochemistry, Yagi Memorial Park, Mitake, Gifu 505-01, Japan

Michael S. Yesley,
Coordinator, Program on ELSI, Human Genome Project, U.S. Dept. of Energy, Los Alamos National Laboratory, Los Alamos, New Mexico 87545, USA

Shohei Yonemoto,
Chief, Laboratory of Social Life Science, Mitsubishi Kasei Institute of Life Sciences, Tokyo 194, JAPAN


Lists of Committee Members and Co-sponsoring Organisations

The Third International Bioethics Seminar in Fukui: Intractable Neurological Disorders, Human Genome Research and Society, was held in the Fukui Chamber of Commerce Building, Fukui, November 19-21, 1993. It was organised by the Organising Committee listed below under the auspices of the:
Study Group on Ethical, Legal and Social Issues (ELSI), of the Study Group of Human Genome Research,
Ministry of Education, Japan
Fukui Medical School, Japan
International Association of Human Biologists

Supported by:
United Nations, Educational, Scientific and Cultural Organisation
World Health Organisation
Council for International Organisations of Medical Sciences
Ministry of Education, Japan
National Science Foundation (USA)
French Embassy (Japan)
Universal Movement for Scientific Responsibility (MURS) - Japan
Pfizer Research Foundation Japan
Eubios Ethics Institute
Fukui Prefectural Government
Fukui International Association
Fukui Medical Association
Fukui Municipal Government
Fukui Convention Bureau

Secretariate:
Department of Internal Medicine and Medical Genetics, Fukui Medical School, Shimoaizuki, Matsuokacho, Fukui 910-11, JAPAN. Tel: 0776-61-3111 Ext. 2300, FAX 0776-67-8110


Honorary Members
Dr. Zbigniew Bankowski
Executive Secretary, CIOMS
Prof. Jean Bernard
Former President, French National Academy Sciences
Sir Walter Bodmer
Former Director, HUGO
Prof. Marvy Clutter
Secretary General, National Science Foundation
Prof. Jean Dauseet
President, MURS France
Dr. Federico Mayor
Director-General, UNESCO
Prof. Victor A. McKusick
Former Director, HUGO
Dr Wataru Mori
Member, Cabinet Council of Science and Technology
Dr. Hiroshi Nakajima
Director-General, WHO
Prof. Michio Okamoto
President, MURS Japan,
Director, International Institute for Advanced Studies
Prof. Itsuro Sobue
President, Aichi Medical University
Dr. James B. Wyngaarden
Foreign Secretary, US National Academy of Sciences
Prof. Talal Younes
Secretary-General, Int. Union of Biological Sciences

Secretariats (Fukui Medical School)
Prof. Koichiro Kishi
Vice Chairman and Professor of Legal Medicine
Prof. Tatsu Yamamoto
Vice Chairman and Professor of Ethics
Treasurer: Dr Yoshihiro Kohli
Associate Professor of Internal Medicine,
Secretary: Dr Mikio Hirayama
Assistant Professor of Internal Medicine

Organising Committee Members
Prof. Norio Fujiki
Chairman, ELSI Working Group of the Ministry of Education Study Group of Human Genome Research;
Vice President, UNESCO Bioethics Committee
Prof. Kazumasa Hoshino
President, Japan Society of Bioethics
Prof. Kiyotaro Kondo
Chairman, Dept. of Public Health, Hokkaido University School of Medicine
Prof. Darryl Macer
Member, UNESCO Bioethics Committee
Director, Eubios Ethics Institute
Prof. Kenichi Matsubara
Chairman, Ministry of Education Study Group of Human Genome Research
Director, HUGO Pacific Office
Prof. Shiro Miwa
President, Japan Society of Human Genetics
Prof. Hideo Sugita
Director, National Institute of Neuroscience
Prof. Hiraku Takebe
Member of HUGO Ethics Committee
Prof. Kanji Torizuka
President, Fukui Medical School

Members of Local Committee
(Fukui Medical School)
Dr Susumu Miyabo (Hospital Director)
Dr Hiroshi Oka (Research Director)
Prof. Masakatsu Sudo (Pediatrics)
Prof. Kiminori Izaki (Psychiatry)
Prof. Toshihiko Kubota (Neurosurgery)
Prof. Akira Taketo (Biochemistry)
Prof. Hirohei Yamamura (Biochemistry)
Prof. Takeo Tanaka (Secretary General)


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