Editors: Norio Fujiki, M.D. & Darryl R.J. Macer, Ph.D.
Eubios Ethics Institute 1992
These files are
only text-files, and contain no photographs. The figures in this book are not
on-line, only legends are given, but the numbers in the tables are on-line.
vi: List of Organising Committee Members &
Co-sponsoring Organisations
viii: Editorial summary
1-7 1. Opening addresses
(chair Norio Fujiki)
1: Opening address - Kanji Torizuka (President of Fukui Medical School)
2: Welcome address - Yukio Kurita (Governor of Fukui prefecture)
3: Welcome address - Yukio Ohtake (Mayor of Fukui City)
4: Congratulatory address - Victor Bulyzhenkov (WHO)
5: Congratulatory address - Federico Mayor (UNESCO-message)
6: Congratulatory address - Hiroshi Nakajima (WHO-message)
7: Congratulatory address - Zbigniew Bankowski (CIOMS-message)
8-17 2. Human genome research
8: (chair George Cohen)
9: Human genome research - Santiago Grisola (message)
11: On the analysis of the human genome and the Human Genome Project - Kenichi
Matsubara
18-32 3. Present status of human genome research in
Japan
18: (chair Itaru Watanabe)
19-23: Physical mapping of chromosome 21 - Yoshiyuki Sakaki
24: Discussion
25-27: Human genome research in immunology - Tasuku Honjo & Fumihiko
Matsuda
28: Discussion
33 4. Historical background on bioethics in medical
genetics / pp. 50-52: Discussion
(chair Kazumasa Hoshino)
34-45: The bioethics process in the United States of
America: who decides? - Michael Yesley
46-49: Historical background on bioethics in medical
genetics in Japan - Kiyoshi Aoki
53-55: 5. Clinical applications of medical genetics
/ pp. 83-84: Discussion
(chair Fumimaro Takaku)
56-63: Genomic imprinting and its relevance to the
occurrence of genetic diseases - Norio Niikawa
64-71: Characterization of germ-line mutations of the
APC gene: application to presymptomatic diagnosis - Isamu Nishisho
72-75: New advances in prenatal diagnosis: implications
of preimplantation diagnosis of genetic disease - Kaoru Suzumori
76-78: Genetic counseling and informed consent - Hiraku
Takebe
79-82: Mapping the human Y chromosome - Yasuo Nakagome
85: 6. Social issues in medical genetics / pp. 118
Discussion
(chair Keiko Nakamura)
86-87: Human genome analysis and human rights - Tadami
Chizuka
88-89: Human rights and medical genetics - Takashi
Tachibana
90-92: New age of genetic tests is coming - Kenji
Makino
93-95: ELSI in human genome research - Asao Fujiyama
96-97: Social problems of human genetic research - a historical
perspective - Shohei Yonemoto
98-104: Medical genetics, social issues, and the genome
programme - Derrek F. Roberts
105-113: Neo-eugenics and disability rights in
philosophical perspective - Daniel Wikler & Eileen Palmer 105
114-117: International aspects of genetic
discrimination - Paul Billings
119: 7. International opinion / pp. 163-165:
Discussion
(chair Norio Fujiki)
120-137: Japanese attitudes to genetic technology:
National and international comparisons. Public and academic support for the use
of government-funded genetic screening in Japan - Darryl Macer
138-144: Ethical considerations in genetic counseling -
Yasuko Shirai, Makiko Osawa & Yukio Fukuyama
145-146: Different client's response at genetic clinics
in Japan and the USA, and its ethical background - Hiroko Kawashima
147-148: Situation and prospect of bioethics in Korea
- Yung Sun Kang
149-151: The urgent problem in China - Nianhu Sun
152-159: A preliminary report on an opinion survey on
the handicapped and heredity in Thailand - Pinit Ratanakul
160-162: The common people's viewpoint on handicaps and
hereditary - Ishiwar C. Verma, Norio Fujiki, R.K. Marvah, Y.R. Ahuja, Krishna
C. Malhotra, Aparna P. Parikh and S. Sharma
166-167: 8. Panel discussion on social, legal and
ethical problems associated with the Human Genome Project / pp. 184-193:
Discussion
(chair Ei Matsunaga)
168-170: From the standpoint of an information conveyer
- Yoshizo Ohno
171-172: From the viepoint of an
obstetrician/gynecologist - Shinryo N. Shinagawa
173-178: Genetic counseling from the perspective of a mother
and a woman - Makiko Osawa
179-180: Three sorts of ethics - Natuhiko Yosida
181-183: Patenting human DNA - Kotaro Nawa
194-196: 9. Scientific responsibility (chair
Michio Okamoto)
197: Congratulatory message - J. Dausset (MURS France)
214-215: Discussion
198-204: Scientist's responsibilities in acquiring
knowledge and developing intervention technologies with regard to the human
genome - Marcel J. Melancon 198
205-210: Scientific responsibility - D. Charleton
Gajdusek
211-213: Ethical feelings in promoting sciences -
Kenichi Fukui
216-220: 10. Closing remarks
216-218: Daniel Wikler
219: Wataru Mori (JCST message)
219: Hiraku Takebe
220: Norio Fujiki
221-224: List of Contributor's
Key Words: Bioethics, Biotechnology,
Eugenics, Genetic Counseling, Genetic Engineering, Genetic Screening, Genetic
Therapy, Human Genetic Disease, Human Genome Project (Scientific, Ethical,
Social and Legal Aspects), Medical Ethics, Medical Genetics (Diagnosis,
Treatment and Prevention), Patenting of Life, Public Perceptions of Genetic
Disease, Public Perceptions of Genetic Counseling, Reproductive Technology.
Further copies can be obtained by ordering from the Eubios Ethics Institute,
Email asianbioethics@yahoo.co.nz
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