News from the NCHGR-NIH ELSI Program

- Eric Juensgt, Ph.D.,

NIH - NCHGR, Building 38A, Room 610, Bethesda, MD 20892, USA

Eubios Ethics Institute Newsletter 4 (July, 1994) 43.

Through the efforts of the members of the NIH-DOE ELSI Working Group, two of the central recommendations of the NIH-DOE Task Force on Genetic Information and Insurance have been incorporated into the health care reform legislation currently being debated in the U.S. Congress. The leading bill, sponsored by Senator Ted Kennedy, now explicitly included genetic testing and counseling among the services to be covered by the plans' basic guarantied benefit package, and explicitly includes "genetic predispositions" among the kinds of "pre-existing conditions" that CANNOT be used to exclude people from health care coverage.

Who says we can't make a difference?

The NCHGR is now searching for a new Chief for the ELSI Branch: I am making my move back to academia in the Fall, when I will join the faculty of the School of Medicine at Case Western Reserve University in Cleveland, Ohio, to work with Tom Murray in their Center for Biomedical Ethics. Meanwhile, those interested in taking a turn at the helm of the ELSI program should inquire with Dr. Elke Jordan, Deputy Director, NCHGR (Email:

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