Bioethics
in Asia
Editors: Norio Fujiki, M.D. & Darryl R.J. Macer, Ph.D.
Eubios Ethics Institute 1998.
These files are
only text-files, and contain no photographs. The figures in this book are not
on-line, only legends are given, but the tables are on-line.
x-xii Editorial Preface and Summary
1-9 O1. Opening Address Mizuo Kuroda
(Chair)
O2. Opening RemarksMichio
Okamoto
O3. Welcome AddressYukitoshi
Sasayama
O4. Welcome AddressAndrzej
M. Wojtczak
O5. Message from the Director-General of
UNESCOFederico Mayor
O6. Science, Technology and BioethicsWataru
Mori
10-12 O7.
UNESCO's IBC and its Declaration on the Human Genome David
Shapiro
13-16 O8. Universal
Declaration on the Human Genome and Human Rights
1. Law and Ethics in the World
(Chaired by David Shapiro, IBC)
17-19 1.1. Human Rights and Health:
Some Global Perspectives Sev S.
Fluss
20-251.2. Legislative Challenges of
the Human Genome Michael Yesley
26-341.3. A Map to a New Treasure
Island: The Human Genome and the Concept of Common Heritage Christian Byk
35-401.4. The Human Genome:
Metaphysical Object and Political Icon Alex
Mauron
41-501.5. Legal Limitations on
Research and its Results? The Cloning Paradigm Carlos Romeo Casabona
51-551.6. Bioethics and New European
Abortion Legislation Nenad Hlaca
56-581.7. Law of Life Units as a New
Legal Order Zentaro Kitagawa
59-631.8. Human Genome as Common
Heritage of Mankind - with a proposal - Ryuichi
Ida
64-65Discussion
2. Foundations of Asian Bioethics
(Chaired by Sang-yong Song, ABA and
Hyakudai Sakamoto, ABA)
66-69 2.1. The Relevance of Bioethics
in Malaysian Society Chee Heng Leng
70-73 2.2. Asian/Indian Man: An
Agonising Appraisal R.N. Sharma
74-76 2.3. The Implications and
Obligations of Self-Financing Medical Education in a Southern Country V. Manickavel & P. Rajaram
77-802.4. Problems of Principlism in
WASP Bioethics Carl B. Becker
81-85 2.5. The Bhagavad Gita on
Genetics and Behaviour81 K.K. Dua
86-91 2.6. China and Eugenics -
Preliminary remarks concerning the Structure and Impact of a Problem of
International Bioethics Ole Doring
92 2.7. Biotechnology and Society92
Amit Krishna De
93-97 2.8. Advancing Biotechnology and
the Crisis of Purpose R.R. Kishore
98-99 2.9. Bioethics in Thailand Pinit Ratanakul
100-102 Discussion
3. Health and Asian Bioethics
(Chaired by Renzong Qiu, IBC &
ABA, Takashi Fujimoto, ABA)
103-106 3.1. Doing Bioethics in the
Philippines: Challenges and Intersections of Culture(s) and Medicine(s) Peter Sy
107-109 3.2. Truth Telling to the
Patient: Cultural Diversity & the East Asian Perspective Ruiping Fan
110-111 3.3. Are Physicians Reluctant
to Withdraw Life-Sustaining Treatment? Arelene
A. Ricalde, Lorene Siaw and S. Y. Tan
112-114 3.4. Ethical Issues in the
Generation & Utilisation of Knowledge in Biotechnology S. Visalakshi
115-117 3.5. Ethical Problems and
Clinical Trials. The Problems of AZT Trials for Vertical Transmission in
Developing Countries Deborah Zion
118-119 3.6. HIV and Prostitution:
Feminist Perspective118 Jin-Ling
Wang
120-1253.7. AIDS Vaccine Test and
Ethics Ann Boyd and Pinit Ratanakul
126-129 3.8. Breakaway from the
Medical Misunderstanding of Approaching Life's End Li Lu and Shuan-Kuaan Zhu
130-135Discussion
4. International Education and Ethics
(Chaired by Darryl Macer, IBC)
136-139 4.1. Culture and Community in
Bioethics: The Case for an International Education Programme Francis P. Crawley
140-143 4.2. Teaching Bioethics in
Medical Genetics140 Mikio Hirayama,
Shigeaki Nakazaki, Kazuo Mano and Norio Fujiki
144-147 4.3. Medical Education and
Japanese Bioethics Michio Miyasaka,
Haruo Yamanouchi, Koji Dewa and Koji Sakurai
148-151 4.4. The Clinical Ethics
Education in Saga Medical School Masashi
Shirahama
152-166 4.5. High School Bioethics
Education Network in Japan Yukiko Asada
and Darryl Macer
167-168 4.6. Internationalization in
Japanese Bioethics Masahiro Morioka
169-171 4.7. Survey of Portuguese
Physicians, Medical Students and Other Health Professionals on the Impact of
Science and Biotechnology in Society M.C.Rosamond
Pinto, M. Pires Bicho and Darryl Macer
172-176 Discussion
5. Population and Environment Issues
(Chaired by Genoveva Keyeux, IBC
and Darryl Macer, IBC)
177-179 5.1. Women and Reproductive
Health in Bangladesh Hasna Begum
180-182 5.2. Fertility Regulation: A
Feminist Perspective Yi-Hong Jin
183-187 5.3. Assisted Human
Reproduction in New Zealand: The Contribution of Ethics Ken R. Daniels
188-190 5.4. The Problem of the Sex
Ratio in Korea Song-Yong Sang
191-195 5.5. Environmental Ethical
Cost of T-shirts, Tiruppur, Tamil Nadu, India C. Thomson Jacob and Jayapaul Azariah
196-198 5.6. Need for Ground Water
Laws and Water Abstraction Ethics for Industrial Use Jayapaul Azariah and C. Thomson Jacob
199-200 Discussion
6. Ethical Issues of the Human Genome Project
(Chaired by Yoshiuki Sakaki,
President, HUGO Pacific and Norio Fujiki, IBC)
201-204 6.1. Human Genome Diversity
Studies in South America Genoveva
Keyeux
205-208 6.2. Genetic Research and
Cultural Integrity Leonardo D. De
Castro
209-214 6.3. Ethical Issues of the Human Genome Project: An Islamic
Perspective Anwar Nasim
215-220 6.4. Ethics and Human Genome
Studies in India I.C. Verma
221-224 6.5. UNESCO IBC & an
Ethical Oversight Committee on Population Genetics Darryl Macer
225-232 6.6. The Visual Transcription
of Family Disease: A Comparison of the Use of Medical Pedigrees in Canadian and
Japanese Genetic Counseling Practices Yoshio
Nukaga
233-236 6.7. Ethical Issues in
Providing Genetic Services to the Asian Population in NYC Victor. P. Penchaszadeh
237-238 6.8. The Next Five Years of
the Human Genome Project in Japan Yoshiyuki
Sakaki
239-243Discussion
7. Ethics and Medical Genetics
(Chaired by Norio Fujiki, IBC and
Ichiro Matsuda, JSHG)
244 7.1. Ethical Guidelines for
Clinical Genetics in Japan Mariko
Tamai
245-248 7.2. Ethical Issues in
Genetics in the Next 100 years Glen
McGee
249-252 7.3. Moral Controversies on
Preimplantation Genetic Testing Sahin
Aksoy
253 7.4. Bioethical Issues in Human
Genetics in India253 K.C. Malhotra
254-262 7.5. Recent Trends in
Bioethics in Medical Genetics and Cloning Norio Fujiki
263-265 Discussion
8. Gene Therapy
(Chaired by Vladimir Ivanov, WHO
Expert Advisor)
266-267 8.1. Gene therapy of
Mitochondrial Diseases266 Yasuo
Kagawa
268-270 8.2. Bioethical Aspects of
Medical Applications of Human Genome andGene Therapy Projects in Russia Vladimir Ivanov
271-277 8.3. Gene Therapy:
Professionals Go Further Away From Public Opinion Yasuko Shirai
278-283 8.4. Human Genetics & the
Integrity of Self: Germline Gene Therapy & Cloning Maurizio Salvi
284-286 8.5. Will Nature Protect
Itself Against Irresponsible Genetic Manipulation? Frank J. Leavitt and Ron Alexenberg
287-289 Discussion
Closing Session
(Chaired by David Shapiro, IBC)
290-292 C1. Ethics in the Age of
Science and Technology Michio
Okamoto
293-295 C2. Ethical Concerns Facing
Biomedical Journals Adrian Ivinson
296-313 C3. Closing Addresses 296
Hyakudai Sakamoto, President ABA
C4. Closing Addresses 297-298 Renzong Qiu, UNESCO IBC;Vice-President ABA
C5. Closing Addresses 299-300 Darryl R.J.
Macer, UNESCO IBC; HUGO Ethics
C6. Closing Addresses
301David Shapiro, UNESCO IBC
C7. Closing Addresses
302-312 C7. Closing Message Hector Gros Espiell
(not on-line) 313 C6. Closing Addresses C8. Norio Fujiki, General Secretary ABC'97; MURS Japan
Poster Session
P1. Bioethics Surveys and the Universal
Approaches to Biotechnology Darryl
R.J.Macer
P2. Human Relationships with Animals in Asia
Pacific Countries and Bioethics Darryl
Macer and Kyoko Yokoyama
P3. Biodiversity Conservation and Ethics:
Sacred Groves and Pools K.C.Malhotra,
Shashi Stanley, N.S. Hemam and Ketaki Das
P4. Interface Between Faunal
Biodiversity and Cultural Heritage in Southwest Bengal, India Kailash C. Malhotra and Ketaki Das
352P5. Women and the Environment K.K.Dua 352 P6. Key Issues in Bioethics in Japan Jiro Nudeshima
353-354P7. Attitudes Toward Molecular
Genetics Predictive Testing: Case Study of Familial Amyloidotic Polyneuropathy
in Kyushu Island Kaori Muto, Setsu
Akutsu, Jiro Nudeshima and Shohei Yonemoto
355-360 P8. Mulitple Authorship in Japan and
the West Michael D. Fetters and
Todd S. Elwyn
361P9 Bioethics Education in Thailand
Pitak Chaichareon and Pinit Ratanakul
WHO Assisted
Satellite Symposium on Medical Genetic Services and Bioethics in Fukui
6th International Bioethics Seminar in Fukui, 8 November, 1997
Opening Ceremony
(Chaired by Masaki Sudo)
F1. M. Sudo,
President, Fukui Medical University
F2. W. Iwamoto, Ministry of
Education, Science, Culture and Sports
F3. Y. Kurita, Governor, Fukui
Prefecture
F4. T. Sakai, Mayor, Fukui City
F5. M. Kuriyama,
Secretary-General of WHO Satellite Symposium
Plenary Lectures on Medical Genetic Services
(Chaired by Norio Fujiki)
367-369 F6. Medical Genetic Services Victor Boulyjenkov
370-374 F7. Proposed WHO Guidelines
on Ethical Issues in Medical Genetics and the Provision of Genetics Services
Dorothy C. Wertz
Panel Discussion on Trends in Different Countries
(Chaired by Victor Boulyjenkov and Ishiwar C. Verma)
375-380 F8. Some Current Questions in
Medical Genetics in the UK Derek F.
Roberts
381-383 F9. Medical Genetics Services
in Russia Vladimir I. Ivanov
384-389 F10. Genetic Services in
Latin America: Issues and Challenges Victor.
P. Penchaszadeh
390-393F11. Primary Prevention is
Better than Secondary Prevention Istvan
Dudas and Andrew E Czeizel
394-395F12. Background of proposed
guidelines for genetic counselling & testing in Japan Ichiro Matsuda
396 F13. The Ethical Guidelines of
the Position Papers of the Society of Human Genetics in Germany Hiedemarie Neizel 397 F14. Chairman's
Remarks on Medical Genetic Services and Bioethic Trends in Different Countries
Ishiwar C. Verma
Panel Discussion on Trends in International Opinion Surveys
(Chaired by Norio Fujiki & Ishiwar
C. Verma)
398-402 F15. Bioethics of Sex
Preference Jai Rap. Singh
403-404 F16. Korean Consciousness on
the Handicapped Person and Herditary Defect Yung Sun Kang and Chung Choo Lee
405-407 F17. Buddhism, Prenatal
Diagnosis and Human Cloning Pinit
Ratanakul
408 F18. Human Genetics and Bioethics
in China Hiraku Takebe
409-412 F19. Results of a 37-Nation
Survey of Geneticists' Ethical Views Dorothy
C. Wertz
413-421 F20. Summary of Panel
Discussion and Opinion Surveys on Medical Genetics in Asian Countries N. Fujiki, M. Hirayama, S. Nazaki, K. Mano, IC.
Verma, P. Ratanakul, WHY. Lo, YS. Kang and V. Boulyjenkov
Comments on Ethics and Medical Genetics in Japan
(Chaired by Ichiro Matsuda and Hiraku Takebe)
422-423 F21.
The Japan Society of Human Genetics: Past, Present and Future Yasuo
Nakagome
424-425 F22.
Mass Media and Bioethics in Medical Genetics Kiyotaro Kondo
426-427 F.23
Shinshu University Hospital Established
the Division of Clinical Genetics as One of its Central Service Departments
Yoshimitsu Fukushima
428 F24.
Current Status & Ethical Concerns of Assisted Reproductive Technology Kazuo
Satoh
429-431 F25.
The Present State of and Issues Concerning Preimplantation Diagnosis Kaoru
Suzumori
432-433 F26.
Muscular Dystrophies and Gene Analysis Makiko Osawa
434 F27.
Ethical, Legal and Social Issues in Presymptomatic Testing for Cancer Yukiko
Tsunematsu
435-436 F28.
Maternal Serum Marker Screening and Japan Down Syndrome Association Workgroup
for Bioethical Issues Kunio Tamai
437-438 F29.
The Draft Proposed WHO Guidelines and the Gaps in Information and Understanding
of Medical Genetics and Genetics Services between Specialists and the General
Population Eiko Fukumoto
439-444 F30.
On the Draft of the Proposed WHO Guidelines on Ethical Issues in Medical
Genetics and the Provision of Genetics Services Akiko Nobe
Additional Reflections from International Perspective
(Chaired by Darryl R.J. Macer)
445-446 F31. Informed Consent in Pediatric
Genetic Screening Frank J. Leavitt
and Dina Pilpel
447-448 F32. The New Genetics and its
Regulation in the UK David Shapiro
449-454 F33. Genetics &
Biomedical Technology: Emerging Milieu & the Indian Context R.R. Kishore
455-459 F34. An Indian Perspective on
Some Bioethical Issues In Human Genetics Indera
P. Singh
460 F35. Selected International Responses to the Human Rights and
Ethical Issues Raised by Human Genetics Sev
S. Fluss
461-464
465-467 Closing Ceremony
(Chaired by Keiichi Ueda)
465 F36. Closing RemarksVictor Boulyjenkov
466 F37. Closing RemarksNorio Fujiki
467 F38. Closing Remarks467Keiichi Ueda
468-473 Addresslist
474 Acknowledgments for Conference and
Publication
Further copies can be obtained by ordering from the Eubios Ethics Institute,
31 Colwyn Street, Christchurch 5, New Zealand
or:
Dr Darryl Macer,
Institute of Biological Sciences, University of Tsukuba
Tsukuba Science City 305, Japan
Please send
comments to Email < D.macer@unescobkk.org
>.
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